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Dementia Activism

After decades of discrimination, silencing and having no voice, people living with dementia are working with allies and advocates to create social change.

We provide resources about dementia activism and events which promote it.

If you are wanting to include something in this section or wanting to find out more, please contact us. 

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Caught in a Moment of Time by Ron Coleman

Ron and the Demented Poets has written a play based round his experiences of using Alexa as a form of care support. 
It is to be performed at the Edinburgh Festival Fringe in 2021 at Venue 40.  

The first act (Caught in a Moment of Time) has been turned into a radio play.  There are two acts, each act is designed to be a stand-alone piece.

Caught in a Moment of Time deals with some of the issues around the use of Artificial Intelligence (AI) in people living with dementia, and also deals with communication and how people perceive the capabilities of people around dementia comparing with the non-judgemental approach of AI.

Ron describes the play as a way of raising a number of possible discussions with the audience.  These include:

1: That the capabilities of people with dementia are often overlooked.
2: That AI has the potential to help us remain in our own homes for much longer if used properly.
3: The need to put in place effective planning methods that enables the interaction between AI and the person living with dementia.
4: Communication has be clearer and more honest than how it is at present.

The radio version of the play's production was performed by John Stahl (Games of Thrones, Season 2 & 3), Jane Poirant (Tales of the Unexpectant) and Karen Taylor (Caught in a Moment of Time, stage version).  Directed and Produced by Laura Cameron Lewis and Co-Produced by Deepness Ltd.

To listen to the Radio Play - https://soundcloud.com/life-changes-trust/demented-poet-radio-play-caught-in-a-moment-of-time/s-xZrLp1hd0Jj

 


Living Well With Dementia selling Dementia Radio and Dementia Online CoursesAlexa & Me by Ron Coleman

Alexa is becoming growingly popular among care agencies, who use Alexa as a form of care support.  Ron believes in using Alexa as a personal assistant through personalisation the device in accordance with his needs.  This way, people who are cognitively impaired enjoy greater independence by using Alexa in a way that gives them the right kind of assistance.

Alexa & Me is a 'peer to peer' resource that guides anyone living with dementia who is not familiar with - or a bit wary of - Alexa through the journey of using Alexa to empower and support their lives.  It's a practical workbook that individuals can use to help with involving technology in their day to day lives in a positive way.

To Read you can download Alexa & Me in PDF Format - CLICK HERE

To Fill In you can download Alexa & Me in Word Format - CLICK HERE

 


Dementia Activism Week 2020

From 14th - 20th September it was Dementia Activism Week, hosted by Life Changes Trust, which helped to celebrate the achievements of people living with dementia in Scotland.

Ron Coleman was the focus on Day 5 (18th September) who is "a new activist, who lives on the Isle of Lewis, and is already making his mark in the dementia world".  

Check it out here - https://www.lifechangestrust.org.uk/news/dementia-activism-week-day-5?fbclid=IwAR3mk8n6Gupz9cFV2T-RSjLFxrrPpTudK3BRDJp3zzYNqRWsPDfmTXW3YQA

 


Loud and Clear!

Exploring two decades of involvement, voice and activism by people with dementia in Scotland.

https://www.dementiavoices.org.uk/loud-an-clear-honours-20-years-of-activism-by-people-living-with-dementia-in-scotland
 


Loud and Clear!

Practical  tips for newer dementia activists and their advocates and allies.

https://www.lifechangestrust.org.uk/sites/default/files/publication/files/LOUD%20AND%20CLEAR%20TIPS%20APPENDIX_0.pdf
 


 

 

 

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Loud & Clear! - Exploring two decades of involvement, voice and activism by people with dementia in Scotland.

https://www.dementiavoices.org.uk/loud-an-clear-honours-20-years-of-activism-by-people-living-with-dementia-in-scotland