About Deepness

 

 

Deepness is a not-for-profit organisation, run by people living with dementia and cognitive impairment for people living with dementia and cognitive impairment.  Our governance is ultimately held by our membership, people living with dementia and is exercised at the AGM through the approval of both our ongoing strategy and the election of the board. 

The board has nine members with a lived experience of dementia and three others.  The Chairperson holds a casting vote if any vote is tied and that vote will be cast with the majority of people with lived experience.  The Chairperson must have lived experience of living with dementia.

Deepness Dementia Media is our website and platform that gives people tools for living well with dementia, designed collaboratively with those living with dementia leading the process.  By coming together in a supportive energetic common space that makes a huge difference to wellbeing of those living with dementia. 

Since our inception we have been successful in setting up an online radio station (Deepness Dementia Radio) which runs 24 hours a day, 7 days a week.  The radio has an increasing number of shows presented and organised by people living with dementia.  This includes Dementia Island Discs, 1 in 100 and DJ's Howard Gordon, Ronald Amanze and Gail Gregory. 

We also run an online Dementia Wellbeing College which aims at helping people to live well with dementia through increased autonomy, promoting better relationships, developing a stronger understanding and growing in a co-productive way.  Providing online courses enables anyone in the UK to attend courses with no geographical limitations.

Our online Dementia TV station was launched in March 2022, providing dementia news, challenging stereotypes and shows about living well with dementia, following our same values and ethos.

We also use multi-media to promote living well with dementia and challenging dementia stereotypes, through art, theatre, music, podcasts, dance, film and conferences.

 

Deepness Board Members

Ron Coleman

Ron is the co-founder and Chairperson of Deepness Ltd.

Originally from Dundee, Ron lives in the Isle of Lewis with his wife, Karen Taylor and dog Nor.  Following his diagnosis with dementia in 2017, Ron established Deepness Ltd as a space for people living with dementia to come together and live well with dementia through the media platform of the website.  He has made a new life writing poetry, plays, music and books as he thrives living with dementia.


 

Howard Gordon

Howard worked in Healthcare for nearly 20 years before his diagnosis of Alzheimer's in March 2017.

Since his diagnosis Howard has been a delegate at the Global Disability Summit in 2018 and the European Commission. Attended UN COSP 12, speaker at the FT Dementia Summit, Manager, Producer, Presenter on an ADI Webinar on Research, spoke at the 25th session of the UN CRPD Committee and advised on the BBC Podcast Series "Dementia and Me". Howard has many roles including the World Health Organisation - Global Dementia Observatory, Director Deepness Dementia Media Ltd, Manager, Producer, Presenter at Deepness Dementia Radio, Dementia Enquirers Project, Sheffield Access Liaison Group, Sheffield Dementia Action Alliance, Sheffield Transport4All, South Yorkshire Dementia Research Advisory Group.  Previously, Howard was a member of the Prime Ministers Champions Group, a Board Member of Dementia Alliance International, Co-Chair of the 3 Nations Dementia Working Group, member of the International Federation on Ageing, Biohringer-Ingleheim Patient Advisory Board and the Steering Group for Dementia Adventure.



Willy Gilder

Willy was diagnosed with Alzheimer's Disease in April 2021.

His form of the disease affects his eyesight but not his memory.  As an ex journalist he has decided to use his skills in interviewing and social media to further knowledge about dementia, in an effort to fight the stigma around the illness.  During 2022 he aims to produce a series of video interviews with people with dementia and is also working on a portrait painting project. He currently lives in Edinburgh.


 


Anne Scott

My name is Anne Scott and I live in Belfast Northern Ireland, with my daughter Evie who is thirteen years old, and I am the mother of five children.

After being diagnosed with Chronic small vessel ischemia, Multiple sclerosis and Fibromyalgia I decided to write a book called… Sizzling Bacon!

Sizzling Bacon is a book to help children and adults understand dementia. Presently I am working with Outside Lives Ltd in Wales on a dementia project to bring Sizzling Bacon into their schools. I am also working on a new book called… Sizzling Bacon and the Bumble Bee and I am also the Editor of the Deepness Dementia newsletter, and am a dementia advocate.


 


Ronald Amanze

Ronald was born and brought up in north-west London, but now lives in Luton. He had a stroke in 2013 and in 2015 was diagnosed with vascular dementia.  He has had several careers, including as a music producer.

Ronald has often felt culturally misunderstood when receiving dementia support.

Inspired by Black history and reggae music that shaped his early years, Ronald has a number of dementia radio shows, including the much loved Ronald Amanze show on Deepness Dementia Radio.


 


Karen Taylor

Karen is co-founder and co-ordinator of Deepness Ltd.

As wife of Ron Coleman, she has first-hand experience of living with someone with dementia.  She was a mental health nurse for 16 years  from 1987.  After finishing her training she worked for the first 6 years with people living with dementia and their families.  This was a great period of change in care.  She then went on to work in adult community mental health, leaving in 2000, going on to work with Ron Coleman for the next 20 years.  She has played an active role in developing Deepness Dementia Radio and the 100/6000 Conferences, whilst also running her other two business' Working to Recovery and Midwife of the Soul.


 


Jim Campbell

Since 2017 Jim has worked as a full-time professional close-up magician.

Prior to becoming a magician he worked for over 20 years in healthcare, education and research, training and working as a mental health nurse.  With some friends who are living with dementia, Jim has become passionate about challenging the stigma and promoting that a dementia diagnosis is not the end, it is just a change.  For many the change is for the better.

 

 

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